Chair: Claire de Oliveira (Scientist, CAMH)
The main tasks of the Data Working Group are to determine data availability and accessibility in each jurisdiction, and potential health or economic outcomes that can be measured from available data sources, such as survival, adverse events, patient-reported outcomes, resource utilization and costs. In order to develop a framework that is applicable at a pan-Canadian level, there needs to be a strategy to identify and harmonize data elements from each province. Data experts from all 10 Canadian provinces are working together to explore the current data holdings and availability. These data experts will also be involved in conducting test case analyses as part of the framework development.