Research Study: Incidental genomic findings
Congratulations to Dean Regier, PhD, Senior Health Economist at the Canadian Centre for Applied Research in Cancer Control and Assistant Professor at the School of Population and Public Health, University of British Columbia, on his newest publication in CMAJ (Canadian Medical Association Journal): Next generation genomic sequencing and the disclosure of incidental findings: a discrete choice experiment.
Dr. Dean Regier and his team conducted a discrete-choice experiment to evaluate participants’ personal utility to determine how much they wanted to know from screening tests. It reveals that two-thirds of us would want to learn about high-risk treatable genomic findings revealed incidentally Dr. Regier’s finding has been receiving media coverage across Canada on CBC News and Vancouver Sun.
Read Dean Regier’s article on CBC News: Should doctors warn you about incidental findings?
Read Dean Regier’s article on Vancouver Sun: One-third of us don’t want to hear bad news from genetic testing – B.C. study
Credits to Shutterstock for the featured image
I would definitely want to know. That said, I have an advanced degree in medical genetics, so would be better able to understand this type of finding than a typical person I suspect. I can totally understand the “not wanting to know” scenario, especially with privacy concerns and the like.