Societal Values and Public Engagement

Yvonne Bombard

Dean Regier

Program Leads: Yvonne Bombard and Dean Regier

Critical decisions about investment in new health technologies and services should reflect society’s values, not just the scientific data available. More and more, members of the public want to be involved in health care decisions that affect them. This desire stems from public ownership of the health system, concerns over the ability of governments to continue to fund ever increasing levels of service and legal requirements for public input in decision making.

Our Societal Values and Public Engagement Program examines how to incorporate public opinion into health care system decision making. In keeping with ARCC’s pan-Canadian nature the program will also explore the creation of a Canadian Network on Public Engagement & Cancer Control.

Recently Funded Projects

Here are some recent ARCC supported projects in this area:

Lead Researcher(s):  Winson Cheung & Colleen Cuthbert

Lead Institution: University of Calgary

Co-Investigators: TBC

Funding Term: 2021-2022

Click here for Project Details

Lead Researcher(s):  Avram Denburg

Lead Institution: The Hospital for Sick Children

Co-Investigators:Abelson J, Bombard Y, Croker A, Fraser B, Gauvreau C, Gibson J, Hayeems R, Moore-Hepburn C, Palmer A, Wilson  M

Funding Term: 2020-2022

Click here for Project Details

Lead Researcher(s): Helen McTaggart-Cowan

Lead Institution: BC Cancer

Co-Investigators: Colene Bentley, Philippa Hawley, Sara Izadi-Najabadi, Adam Raymakers, Stuart Peacock

ARCC Program Area(s): Societal Values and Public Engagement

Funding Term: 2019-2021

Click here for Project Details

Principal Investigator: Jackie Bender – Princess Margaret Cancer Centre

Co-Investigators: Norma M. D’Agostino, Abha A. Gupta, Laura Mitchell, Fuchsia Howard, Sheila Garland, Argerie Tsimicalis, Emily Drake, Karine Chaliflour, Anthony Marrato, Nikki Leigh McKean, Adriana Lombardo

Funding Period: 2018-2019

Principal Investigator: Frances Wright – Sunnybrook Research Institute

Co-Investigators: Andrea Covelli, Erin Kennedy, Fayez A. Quereshy

Funding Period: 2018-2019

Resources:

Final Report – Making Fair and Sustainable Decisions about Cancer Drugs (En)

Final Report – Making Fair and Sustainable Decisions about Cancer Drugs (Fr)

The below video produced by Dr. Dean Regier with ARCC support features dialogues from experts regarding making fair and sustainable decisions on cancer drug funding in Canada.

Making Decisions about Funding Cancer Drugs Summary Report 2015 Summary report of CanEngage deliberative public engagement event.

Improving Ontario’s Health System through Patient and Family Engagement from Cancer Care Ontario Report from Cancer Care Ontario 

Deliberative Public Engagement: Nine Principles Report from the National Consumer Council 

Patient and Citizen Involvement from Health Technology Assessment International  

Pan-Canadian Oncology Drug Review Patient Engagement Guide from CADTH 

Patient Engagement from Health Quality Ontario

Previously funded projects

Here are some of the projects we funded in this area in the past:

Principal Investigator: Yvonne Bombard – St. Michael’s Hospital

Co-Investigators: Jordan P. Lerner-Ellis, Raymond H. Kim, Adena Scheer, Ahmed Bayoumi, Kevin E. Thorpe, Andreas Laupacis, Emily Glogowski, Kasmintan A. Schrader

Funding Period: 2017-2018

Studentship Award

Student: Sarah Kehoe – St. Mary’s University

Principal Investigator: Lucie Kocum 

Funding Period: 2017

Principal Investigator: Dean Regier – BC Cancer Agency

Co-Investigators: Stuart Peacock, Jeffrey Hoch, David Veenstra

Funding Period: 2015-2016

Principal Investigator: Jennifer Gibson

Co-Investigators: Stuart Peacock, Jeffrey Hoch and Scott Berry

Funding Period: 2012-2013

Principal Investigator: Dean Regier – BC Cancer Agency

Co-Investigators: n/a

Funding Period: 2012-2013

Principal Investigator: Nick Bansback – University of British Columbia

Co-Investigators: David Whitehurst, Mohsen Sadatsafavi

Funding Period: 2012-2013

Principal Investigator: Jennifer Gibson – University of Toronto

Co-Investigators: Stuart Peacock, Jeffrey Hoch and Scott Berry

Funding Period: 2012

Principal Investigator: Jennifer Gibson – University of Toronto

Co-Investigators: Stuart Peacock, Jeffrey Hoch and Scott Berry

Funding Period: 2011-2012

Principal Investigator: Stirling Bryan – University of British Columbia

Co-Investigators: Nick Bansback and Stuart Peacock

Funding Period: 2011-2012

Principal Investigator: Chris Skedgel – Capital Health

Co-Investigators: Ron Akehurt and Tallal Younis

Funding Period: 2011-2012

Principal Investigator: George Browman – BC Cancer Agency

Co-Investigators: Colene Bentley and Louise Zitzelsberger

Funding Period: 2010-2011

Principal Investigator: Nick Bansback – University of British Columbia

Co-Investigators: Mark Harrison, Paul K. Han, Borsika Rabin

Funding Period: 2017-18

Leveraged Projects

Here are some additional projects our investigators and research personnel have been involved with:

Principal Investigator: King M
Co-Investigators: Aaronson N, Brazier J, Cella D, Fayers P, Ng W, Peacock S, Pickard S, Stockler M, Street D, Thompson N
Granting Agency: National Health and Medical Research Council (Australia)
Years: 2010-12
This project also falls under ARCC’s Health Technology Assessment theme.

Principal Investigator: Browman G
Collaborators: Canadian Centre for Applied Research in Cancer Control, Priorities in Cancer Care Network
Granting Agency: Canadian Partnership Against Cancer Corporation
Years: 2008-2011

Principal Investigator: Peacock S
Co-Investigators: Teckle P, van der Hoek K, Melosky B, Gelmon K, Chia S
This project also falls under ARCC’s Health Technology Assessment theme.

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